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Ardynn Blog

When Patients Lead, Outcomes Improve

September 21, 2024

A cancer diagnosis brings more than medical decisions—it brings fear, uncertainty, and often, a feeling of lost control. But when people are invited to lead their treatment decisions, everything shifts. At Ardynn, we hear it all the time: “I didn’t know I could say no.”“I just wanted someone to explain it in a way that made sense to me.”“Once I understood the tradeoffs, I made a choice that finally felt like mine.” The old model of care—where physicians made decisions for patients—is being replaced by something better: shared, collaborative, patient-led care. And the evidence is clear: when people are informed and empowered, outcomes improve (Barry & Edgman-Levitan, 2012). Why It Matters: What the Research—and Real Life—Show Us Better Adherence. Fewer Hospitalizations. Higher Satisfaction.When people actively participate in their treatment decisions, they are more likely to follow through on their plan, understand what to expect, and speak up when something doesn’t feel right. In one study, people with diabetes who participated in shared decision-making had better blood sugar control and fewer hospital admissions than those who didn’t (Stacey et al., 2017). In cancer care, where tradeoffs often involve balancing survival with side effects, that kind of engagement can be lifesaving. Better

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When Treatment Reflects What Matters Most

August 21, 2024

After a cancer diagnosis, one of the first things many people hear is a list of treatment options. Surgery. Chemo. Radiation. Targeted therapy. Each comes with its own risks, benefits, and tradeoffs. But what’s often missing in these conversations is the question:What matters most to you? One of our members, a 67-year-old man living with prostate cancer and COPD, put it simply: “They asked what I wanted to do, but no one asked what I wanted my life to look like.” He wasn’t alone. People facing cancer often feel rushed, overwhelmed, or unprepared to make decisions. But when they’re supported in connecting treatment options with their values—whether that means staying independent, avoiding pain, attending a child’s wedding, or having more time—they feel more confident and less alone. And the research is clear: when treatment decisions are made in the context of a patient’s values and preferences, outcomes improve (Institute of Medicine, 2011). What We Mean by Values and Preferences Values are the beliefs and priorities that shape how someone sees their health and life.They might include faith, family, dignity, quality of life, independence, or leaving a legacy. Preferences are how those values translate into decisions: Each person’s approach is different.

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How to Have Tough Conversations About Cancer with Your Family and Friends

July 21, 2024

A cancer diagnosis changes everything—and often, one of the hardest parts is having to tell the people you love. These conversations can be deeply emotional, sometimes awkward, and often overwhelming. But they’re also essential. Sharing your diagnosis can help you build the support system you’ll need throughout your journey. At Ardynn, we often hear: “I didn’t know how to start the conversation. I was worried about upsetting them—or not having the right words.” You’re not alone. Here’s a compassionate, step-by-step guide to help you approach these important conversations with clarity, confidence, and care. 1. Prepare Yourself First Before you talk to others, take a moment to reflect on what you need from the conversation. Are you looking for emotional support? Help with logistics? Or do you just want to share the news? Try to get familiar with your diagnosis and treatment plan so you feel more grounded. Your Ardynn advocate can help you understand your options, clarify language, and even practice the conversation with you ahead of time (American Cancer Society, 2022). 2. Choose the Right Setting Find a quiet, comfortable place where you won’t be interrupted. Timing matters too—choose a time when everyone can be fully present and emotionally

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Best Ways to Support a Loved One with Cancer

June 21, 2024

When a loved one is diagnosed with cancer, it can be a challenging time for everyone involved. As a friend or family member, you may feel unsure about how best to support them. The journey through cancer is deeply personal and complex, but your support can make a significant difference. Here are some thoughtful and effective ways to support a loved one with cancer.   1. Listen Actively   Be Present: Sometimes, the most powerful thing you can do is simply be there. Offer a listening ear without trying to solve their problems or provide unsolicited advice. Encourage Open Communication: Let them express their feelings and fears. Avoid interrupting or steering the conversation. Show empathy and validate their emotions.   2. Educate Yourself   Learn About the Disease: Understanding the type of cancer your loved one is facing, their treatment options, and potential side effects can help you provide better support. Stay Informed: Keep up with their treatment plan and any changes. This knowledge will enable you to offer practical assistance and emotional support more effectively.   3. Offer Practical Help   Daily Tasks: Offer to help with everyday chores like cooking, cleaning, grocery shopping, or driving them to appointments.

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Optimizing Conversations with People Facing Cancer: A Clinician’s Guide

May 21, 2024

In cancer care, communication is more than just a means of delivering information—it’s a critical part of treatment. The way we talk with our patients impacts how they process their diagnosis, engage with care plans, and ultimately, how they experience their journey. At Ardynn, we work closely with both patients and providers, and we’ve seen firsthand how meaningful communication improves decision-making, reduces anxiety, and builds lasting trust. Here are practical ways physicians can optimize conversations to better support patients—clinically, emotionally, and personally. 1. Set the Right Tone from the Start Creating a safe, private space—both physically and emotionally—sets the foundation for open dialogue. Small adjustments like sitting at eye level, minimizing interruptions, and allowing time for silence signal that your patient’s concerns are heard and valued. What helps: A calm presence, genuine eye contact, and a few extra minutes of uninterrupted time go a long way in lowering anxiety and building trust. 2. Lead with Empathy The emotional weight of a cancer diagnosis is profound. Acknowledging this—before diving into treatment protocols—helps humanize the experience. Even brief moments of empathy (“I know this is a lot to take in”) create space for trust and mutual respect. What helps: Listening without interrupting,

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Your Preferences and Values Matter When It Comes to Treatment Decisions

May 20, 2024

When faced with a medical diagnosis, especially a serious one, making treatment decisions can be overwhelming. In these moments, it’s crucial to remember that your preferences and values play a central role in shaping your treatment journey. Medical decisions are not one-size-fits-all, and incorporating your personal beliefs, lifestyle, and goals can lead to better health outcomes and a more fulfilling experience. Understanding Your Preferences and Values Personal Preferences: These include your likes, dislikes, and what you are comfortable with regarding medical treatments. For instance, you might prefer less invasive procedures or have a preference for certain types of medications over others. Cultural and Spiritual Beliefs: Your cultural background and spiritual beliefs can significantly influence your treatment choices. Some people may seek treatments that align with their holistic or spiritual practices, while others might avoid certain medical interventions due to religious reasons. Lifestyle Considerations: Your daily routine, work commitments, family responsibilities, and hobbies are all factors that should be considered. A treatment plan that allows you to maintain your lifestyle can enhance your quality of life during and after treatment. Long-term Goals: Think about your long-term health goals and aspirations. Whether it’s maintaining independence, minimizing side effects, or achieving a specific

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The Importance of Support for Caregivers

April 20, 2024

Caregivers play an essential role in the lives of those they support, often providing both emotional and practical care for loved ones facing illness, disability, or age-related challenges. While caregiving can be deeply rewarding, it can also be incredibly demanding and stressful. Supporting caregivers is crucial not only for their well-being but also for the quality of care they can provide. Here’s why caregiver support is vital and how it can be effectively provided. The Burden of Caregiving Emotional Stress: Caregivers frequently experience high levels of emotional stress. They may feel overwhelmed by their responsibilities, anxious about their loved one’s health, and isolated from friends and social activities. Physical Strain: The physical demands of caregiving can be substantial, including tasks such as lifting, bathing, and administering medications. This can lead to physical fatigue and health problems for caregivers. Financial Pressure: Many caregivers face financial strain due to the costs of care and the potential need to reduce work hours or leave their jobs. This can exacerbate stress and impact their long-term financial stability. Time Constraints: The time commitment required for caregiving can leave little room for personal activities, self-care, or socialization. This can result in burnout and decreased mental health.

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Confronting Racial Disparities in Cancer Care

March 20, 2024

Not everyone experiences cancer the same way. While the disease itself doesn’t discriminate, the systems surrounding diagnosis, treatment, and support too often do. Racial disparities in cancer care are a longstanding and unacceptable reality—affecting when cancer is found, what treatments are offered, and ultimately, who survives. This isn’t just a question of fairness. It’s a public health crisis that demands urgent attention and lasting change. Where the Gaps Begin Later Diagnoses, Worse OutcomesBlack Americans have lower survival rates for most cancers and are more likely to be diagnosed at a later stage, when treatment options are fewer and outcomes are poorer. Barriers to AccessFrom lack of insurance to transportation challenges and fewer nearby treatment centers, many people of color face real and persistent barriers to getting timely, high-quality care. Inconsistent QualityEven when care is available, it’s not always equitable. Research shows that Black and Hispanic patients are less likely to receive treatment that aligns with national guidelines and more likely to experience delays. Lack of Representation in ResearchWhen communities aren’t included in clinical trials, we all lose. Treatments may be less effective—or less understood—for groups who weren’t part of the research. Why These Disparities Persist The reasons behind these disparities

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The Benefits of Shared Decision Making in Healthcare

February 20, 2024

In the realm of healthcare, shared decision-making (SDM) has emerged as a transformative approach that empowers patients to actively participate in their care journey alongside healthcare professionals. This collaborative process involves patients, their families, and healthcare providers working together to make informed decisions that align with patients’ values, preferences, and unique circumstances. In this blog post, we’ll explore the numerous benefits of shared decision making and why it’s essential for promoting patient-centered care. Enhanced Patient Empowerment: Shared decision-making places patients at the center of the decision-making process, empowering them to become active participants in their own healthcare. By involving patients in discussions about their treatment options, risks, benefits, and alternatives, SDM enables them to make choices that are consistent with their personal values, priorities, and goals. Improved Patient Satisfaction: When patients feel heard, respected, and involved in decisions about their care, they are more likely to report higher levels of satisfaction with their healthcare experience. Shared decision-making fosters trust and collaboration between patients and healthcare providers, leading to greater confidence in treatment decisions and increased satisfaction with the care received. Better Health Outcomes: Research has shown that shared decision making can lead to better health outcomes for patients. By engaging

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Health Literacy: Learning the Cancer Lingo

January 26, 2024

Navigating the world of cancer diagnosis, treatment, and survivorship can be overwhelming, especially for individuals who may not be familiar with the specialized language and terminology used in oncology. Health literacy, or the ability to understand and use health information to make informed decisions about one’s health, plays a crucial role in empowering patients and caregivers to actively participate in their cancer journey. In this blog post, we’ll explore some common cancer lingo and why health literacy is essential for anyone affected by cancer. Why Health Literacy Matters: Informed Decision Making: Understanding cancer terminology empowers patients and caregivers to ask informed questions, weigh treatment options, and participate in shared decision-making with healthcare providers. Communication with Healthcare Providers: Clear communication between patients and healthcare providers is essential for effective care. Health literacy enables patients to communicate their concerns, preferences, and treatment goals more effectively. Treatment Adherence: Patients who understand their treatment plans are more likely to adhere to medications, follow-up appointments, and lifestyle recommendations, leading to better treatment outcomes. Self-Advocacy: Health-literate individuals are better equipped to advocate for themselves and navigate the healthcare system, ensuring they receive appropriate care and support. Emotional Well-Being: Understanding cancer terminology can reduce anxiety and uncertainty,

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